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Saturday, July 5, 2014

Readmitted to Hospital with HSP

After ten days in the hospital,  we were finally discharged.  All the signs and symptoms of the ruptured appendix are gone except for the three little incisions on her belly.  But family time at home would only last for two days.

Boo woke up this morning with severe abdominal pain and her right eyelid extremely swollen.  Her abdominal pain seemed worse than ever before.  Unbelievably the pediatrician's office was open for business.  After a quick phone call,  we hurried Boo to the office.

The majority of clinicians are now in agreement that Boo now suffers from HSP (Henoch-Schonlein Purpura.) WebMD has a spot-on definition for what Boo has but I can't link to it for you as I am attempting to post this from my cell phone.  This is a reaction in her body that leads to skin rash,  joint pain and severe abdominal cramping.  In very rare cases,  it can include unilateral eyelid swelling.  Medicine can't say exactly what triggers the onset but they agree there is no cure.  It plays out over 4-6 weeks and will eventually resolve on it's own.

Until then,  it's all about pain management.  For now,  she's readmitted to the exact same room we had for ten days on the pediatric unit and rotating Morphine and Toradol.  She received Morphine in the ER (Pediatrician wanted to direct admit to hospital,  I negotiated stopping through ER for quicker pain relief. )

But in an attempt to stay off the harder drugs,  we're trying Toradol every 6 hours first.  The Morphine worked fast (through IV)  but only worked for about 75 minutes before she was shaking in pain.  The Toradol (intravenous) worked just as fast and seems to be lasting much longer.  She's started to whimper now (in her sleep)  and we're at the five hour mark. Time for her next dose of Toradol. I'm also told that the Toradol has an anti-inflammatory effect which will help too.

We're told we should only be here for 24 hours as long as she stays compliant with eating,  drinking and walking. She becomes non-compliant with extreme pain (and I don't blame her.)

Her feet still hurt when she walks to the bathroom but we'll see what tomorrow brings. It's almost 11pm and she dozing off again.

OJD

13 comments:

Mary in GA said...

So very sorry to hear this, I had hoped that Boo would be on the mend. I have prayed again for Boo and your family. Keep us all posted and stay strong.

Anonymous said...

I am very, very sorry to for this. Poor Boo!
On going prayers for your baby.
sidetracksusie

Andrea said...

I am so sorry. I am covering her in prayer.

Jason and Michelle said...

I am so sorry she is going through this.
I will continue to pray for her.

Dizzy-Dick said...

We are praying that she will start feeling better real soon.

JMD said...

I was so in hopes little Boo was mending well. Will pray for her full health to return. Thanks for the update.

Jay Ater said...

Not a good way to spend your summer vacation.

Get well soon Boo!

Miss M said...

I'm praying for y'all. So sorry Boo has had this setback.

Get well, Boo!

Katy Allene said...

Wow!! There is nothing like watching your child in pain, and you can do nothing about it. We will pray and send good thoughts and wishes to Boo, you and wifey, that Boo gets better very soon.

JaneofVirginia said...

One of my kids has HSP as an incidental diagnosis also. He is doing well now. So, you will get through this scary time and return her to a a plateau of good health. Best wishes to you all.

lotta joy said...

With as many mistakes as they've done on poor Boo so far, I hope they truly know what is wrong and another diagnosis isn't in the poor baby's future. Appendicitis used to be the FIRST suspect with abdominal pain.

Dizzy-Dick said...

Give us an update, please.

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